Japanese

Title	訪問看護師による医療的ケアの必要な在宅重症心身障害児の親の体調の把握と支援
Subtitle	研究
Authors	小泉麗*1, 長谷美智子*2
Authors (kana)
Organization	*1昭和大学保健医療学部, *2武蔵野大学
Journal	日本小児看護学会誌
Volume	31
Number
Page	35-44
Year/Month	2022 /
Article	報告
Publisher	日本小児看護学会
Abstract	「抄録」 目的: 訪問看護師による医療的ケアの必要な在宅重症心身障害児の親の体調に関する把握の視点と方法, 実施している支援を明らかにする. 方法: 質的記述的研究. 医療的ケアの必要な在宅重症心身障害児を訪問する看護師10名を対象に, インタビューガイドに基づく個別の半構成的インタビューを行った. 結果: 訪問看護師による親の体調に関する把握の視点と方法として【ケアの抱え込みをとらえる】, 【日常における体調の揺らぎやすさをとらえる】, 【いつもと違う様子を敏感に察知し体調を感じ取る】, 【自然な会話の中で体調の話を引き出す】, 支援として【元気を回復できるようかかわる】, 【自分の体調を整えられるよう働きかける】, 【サポート体制を整える】, 【尊重し寄り添う】を抽出した. 結論: 訪問看護師は, 親の体調を察知し, サポート体制を整え, 子どものケアの抱え込みを回避することや, 親自身による体調管理を支援することが重要である.
Practice	看護学
Keywords	重症心身障害児, 親, 体調, 訪問看護師, 医療的ケア, children with severe motor and intellectual disabilities, parents, physical and mental condition, visiting nurses, medical care

English

Title	Understanding and support provided by visiting nurses to maintain the physical and mental condition of parents of children with severe motor and intellectual disabilities who need medical care
Subtitle
Authors	Rei Koizumi*1, Michiko Hase*2
Authors (kana)
Organization	*1Showa University, *2Musashino University
Journal	Journal of Japanese Society of Child Health Nursing
Volume	31
Number
Page	35-44
Year/Month	2022 /
Article	Report
Publisher	Japanese Society of Child Health Nursing
Abstract	[Abstract] Aim: The aim of this study was to clarify how visiting nurses understand the physical and mental condition of parents of children with severe motor and intellectual disabilities at home who need medical care, and the support provided by visiting nurses to maintain the physical and mental condition of parents. Methods: A qualitative descriptive research method was used. Study participants comprised 10 nurses who provide care for children with motor and intellectual disabilities who need medical care at home. Individual semi-structure interviews based on an interview guide were used to collect data. Results: Four categories about understanding the physical and mental condition of parents were extracted: "Understanding the amount of care parents have", "Understanding the ease of fluctuations in parents' physical and mental condition in daily life", "Recognizing parents' physical and mental condition by sensitively detecting unusual situations", and "Discovering the story of parents' physical and mental condition in a natural conversation". Four categories about actual support were also extracted: "Rejuvenating parents physically and mentally", "Encouraging parents to improve their physical and mental condition", "Establishing a support system", and "Respecting and being close to parents' feelings". Conclusion: Visiting nurses need to detect the physical and mental condition of parents of children with severe motor and intellectual disabilities and establish a support system to avoid parents having excessive care burden. Additionally, it is important for visiting nurses to help parents control their own physical and mental condition.
Practice	Nursing
Keywords	children with severe motor and intellectual disabilities, parents, physical and mental condition, visiting nurses, medical care

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