Japanese

Title	NICUに入院経験のある医療的ケア児を育てる母親が退院を意思決定した要因
Subtitle	研究
Authors	石川桂
Authors (kana)
Organization	元愛媛県立医療技術大学大学院
Journal	日本小児看護学会誌
Volume	31
Number
Page	178-185
Year/Month	2022 /
Article	報告
Publisher	日本小児看護学会
Abstract	「抄録」 本研究の目的は, NICUに入院経験のある医療的ケア児を育てる母親が退院を意思決定した要因を明らかにすることである. NICUなどを退院後, 外来通院をしている医療的ケア児を育てる母親6名を対象に半構成的面接を実施し, 質的統合法(KJ法)を用いて分析を行った結果, 6つの要因が明らかになった. 母親は, 【対処を模索:生命の危機感がもたらす不安への対処を模索】と【責任の移譲:背負いきれない子どもの命と家族の生活の間で悩み夫の意見に移譲】の相反する2つのことを実施しながら, その後, 変化し, 【向き合う覚悟:生命の尊さを感じ子どもと向き合う覚悟】をしていた. そして, 【情報の獲得:子どもと生活していくための安心できる情報の獲得】を通して, 【家族の喜び:子どもと過ごす時間がもたらす家族の喜び】を感じ, 【生活の再構築:在宅移行体制の構築】する構造が常に循環し, 退院に対する意思決定へと至っていた.
Practice	看護学
Keywords	NICU, 医療的ケア児, 母親, 退院, 意思決定, children with constant medical needs, mother, discharge from hospital, decision making

English

Title	Factor that mothers of children with severe medical needs experience when considering NICU discharge
Subtitle
Authors	Kei Ishikawa
Authors (kana)
Organization	Ehime Prefectural Graduate School of Health Sciences
Journal	Journal of Japanese Society of Child Health Nursing
Volume	31
Number
Page	178-185
Year/Month	2022 /
Article	Report
Publisher	Japanese Society of Child Health Nursing
Abstract	[Abstract] This study sought to identify factors that mothers of children with constant medical needs consider when deciding whether or not to request NICU discharge. We conducted semi-structured interviews with six mothers who were raising children that had been discharged from NICU etc. and that continued to receive medical care as outpatients. We analyzed interview data using the Qualitative Synthesis Method (KJ Method) which is an idea-generating and structure. We found six conditions that mothers experienced during their decision-making processes: (1) seeking coping: proactively searching for how to cope with their own anxiety caused by a constant life-threatening situation, (2) leave of responsibility: passively leaving decision-making to husbands because of feeling overwhelmed by their child's life-threatening experience and by the weight of fulfilling their other family responsibilities, (3) acceptance of their child's condition: acceptance by developing a greater appreciation for the preciousness of life, (4) acquisition of information: acquiring reliable information to be able to live with a child with severe medical needs, (5) feelings of happiness among family members: family members feeling happy by spending time with a child with severe medical needs, and (6) construction of a new lifestyle: constructing a lifestyle that provides intensive home-base care. Mothers experienced (1) and (2) as conflicting conditions, and transformed to feel (3). Through (4), mothers felt (5) and reached to (6). These six conditions circulated and developed to a point of decision-making regarding discharge.
Practice	Nursing
Keywords	NICU, children with constant medical needs, mother, discharge from hospital, decision making

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