Japanese

Title	在宅療養生活を継続している学童期の医療的ケア児と家族に対する訪問看護師の支援の現状とその課題
Subtitle	資料
Authors	遠藤麻子, 下野純平, 濱中喜代
Authors (kana)
Organization	岩手保健医療大学看護学部
Journal	日本小児看護学会誌
Volume	33
Number
Page	132-140
Year/Month	2024 /
Article	報告
Publisher	日本小児看護学会
Abstract	「抄録」 学童期の医療的ケア児と家族に対する訪問看護師の支援の現状とその課題を明らかにし, 医療的ケア児とその家族が地域で過ごす上での訪問看護師のあり方を検討することを目的に, 訪問看護師9名に半構造化面接を行い, 質的記述的に分析した. 支援の現状として, 【今までの経験だけではひとりで看護実践することに不安や難しさがある】, 【成長とともにリハビリテーションや見守りがケアの中心になる】などの8カテゴリー, 支援の課題として【特別支援学校や病院との連携において訪問看護師が担う役割を増やしていく】, 【家族があきらめなくてもよいように人材を確保していく】などの7カテゴリーに分類した. 訪問看護師が, 医療的ケア児や家族のライフサイクルに合わせて家族の準備を支援していくこと, 社会とのつながりも多くなる学童期に特化した視点をもってコーディネーターとしての役割を発揮していくことが求められる.
Practice	看護学
Keywords	学童期, 家族, 訪問看護師, 医療的ケア児, 支援の現状と課題, school-age children, family, home care nurses, children with medical needs, current state of support and challenges

English

Title	Home care nursing for school-age children with medical needs and their families : Current situation and challenges
Subtitle
Authors	Asako Endo, Junpei Shimono, Kiyo Hamanaka
Authors (kana)
Organization	Iwate University of Health and Medical Sciences
Journal	Journal of Japanese Society of Child Health Nursing
Volume	33
Number
Page	132-140
Year/Month	2024 /
Article	Report
Publisher	Japanese Society of Child Health Nursing
Abstract	[Abstract] This study aimed to elucidate the challenges home care nurses face in supporting school-age children with medical needs and their families, as well as the current state of the support provided. The study also examined the role of home care nurses in facilitating community integration of these children and their families. Semi-structured interviews were conducted with nine home care nurses, and the data were analyzed using qualitative and descriptive methods. The current state of support was divided into eight categories, including "cannot provide care alone or provide developmentally informed interaction even after studying" "having anxiety about, and difficulty with, practicing nursing by themselves relying only on their previous experience" and "rehabilitation and oversight becoming central to the children's care as they grow." Support challenges were divided into seven categories, including "increasing the role of health nurses in cooperating with special-needs schools and hospitals" and "securing enough human resources so that family members would not have to give up." The findings of this study indicate that home care nurses fulfill an important role in supporting the family members of children with medical needs in their preparation for the developmental changes associated with the children's life cycles. Home care nurses are also expected to serve as coordinators with a specialized perspective on school-age children, the period when children's social involvement increases.
Practice	Nursing
Keywords	school-age children, family, home care nurses, children with medical needs, current state of support and challenges

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